Huntington’s disease (HD) is a fatal, degenerative brain disorder that devastates families for generations. HD slowly diminishes one’s ability to think, eat, talk and reason. Symptoms typically occur between 30 to 50 years old, however symptoms of Juvenile HD have been seen in toddler children. Currently, there is no cure and only one FDAA-approved treatment for one symptom of the disease.
Rush University Medical Center in Chicago has been designated as a Center of Excellence providing care to HD families for 14 years.
Every year, a group of dedicated volunteers and the Illinois Chapter of Huntington’s Disease Society of America host its Annual “Celebration of Hope” in Chicago.
The HDSA hosts this annual event to benefit Huntington’s disease and the HDSA Center of Excellence at Rush University Medical Center in Chicago. A special part of the event is an awards ceremony that pays tribute to select individuals from Illinois who have made significant contributions to their community.
The Huntington’s Disease Society of America welcomes the opportunity to develop partnerships in their fight for a cure for this tragic disorder. Partnership opportunities include the following:
- Company listed as a presenting sponsor
- Logo placement in marketing materials
- Tickets to special events
- Recognition on social media sites
Diagnosis for HD is based on genetic testing which involves taking a blood sample for DNA analysis to determine whether gene mutation has occurred. Symptoms do not have to be present to test positive for Huntington’s.
Counseling should be provided before and after testing which is strictly confidential. It can be the beginning of an overwhelming journey.
Health and life insurance can be difficult to obtain with any terminal illness. However, guaranteed life insurance is available today with no health questions asked and no medical exam. Between the ages of 40 and 80, guaranteed acceptance policies are available up to $25,000. Rates are also guaranteed at the age you enroll and cannot be canceled because of changes in health.
Those diagnosed with Huntington’s may want to consider a life insurance option that is affordable, with a locked in monthly rate and can offer some solution to the emotional and economic struggle of living with HD.
To make a difference to those that truly need your help, please visit the Huntington’s Disease Society of America for more information.